Tuesday, March 18, 2014
What a crazy couple of weeks. Flu, strep, sinus infections, medicines, cleaning, crying, and sleepless nights. I have been doing some thinking lately and don't know how we ever survived the days when our quads were infants. YIKES! If I think the past two weeks had been rough, I must be crazy!!! I mean, it's not like we had a ton of help when the kids were infants. I'm hoping that today will be the end of all our sickness. I might just open the windows tomorrow and air out the house again. I had done it right after we passed the silly tummy bugs, but am feeling like maybe another round of that might be what I need here. In case you haven't yet been in the know...Emma is scheduled for her second craniotomy May 12th. Her first craniotomy was to correct her fused suture on the front of her skull. (Metopic synostosis). We knew there was a chance she would need more surgery, but were optimistic. As she grew, we saw her head beginning to deform. Each time I took her to see her Neurosurgeon or her Plastic surgeon they continued to confirm some of my fears. They both agreed it was best to wait until she was five. Emma is now four, and neither surgeon wanted to wait any longer. I have been talking more with Emma about what to expect and prepare her for things that are going to scare her. I told her we would take her to the hospital when it's still dark outside. Mommy, Daddy and Grandma Susan would all be with her. She will go with the doctors and they will "fix her noggin" and make it perfect like all the pretty princesses. I had to warn her that when she wanted to wake up, she wont be able to open her eyes. This is what really scares her. Telling her that she won't see for four days and that she will have gooey, sticky hair, and won't be able to get out of bed. That she will only hear Mommy and Daddy or feel our touch. The doctors are very confident that she will only spend one night in PICU and then move to Peds for a few days. At least once she is out of PICU and settled in to a regular room, the boys can come and visit her. That I know will help her feel better. We ask that you please pray for Emma and our family. We hope for an easy surgery, fast recovery, and for our family to be safe at home together.