Well, it seems like I've traveled this road before....oh wait, I never got off the exit!
I took Parker to see the Nephrologist today (Kidneys), and Maddox to the Pulmonologist(lungs) today. Parker got a wonderful report. His kidneys looked great. I knew going in the Maddox wouldn't come out with flying colors but wasn't expecting the news I got. Maddox has been sick quite frequently since he escaped from PICU last spring. Constantly snotty, coughing, wheezing, ear infections and more. We took him to see our pedi this past week because he was sick. We had been using the nebulizer, giving him antibiotics and reflux meds. He seemed to be making progress.
Boy was I wrong! It turns out he never really recovered from Metopneumo Virus(RSV). It apparently triggered severe reflux and possibly allergies to something unknown. We are waiting to see the GI specialist, allergist, and Speech Therapist to see how bad the damage is to his esophagus and the lining in his lungs and sinuses. The pulmonologist thinks he's possibly aspirating reflux which is making his lungs worse leading to inflamed tissue in other areas and it's just running in circles in his body so he can't fully recover. Once they find the culprit of his recurring pneumonia issues he should be on the road to a full recovery. It's getting there I'm worried about. There are a lot of tests involved and they hope to complete it all in the next month. As if I didn't have enough going on.
I will try to keep you updated on Maddox, we are in full moving mode so it may be a week or so before I am up and running again. We can't wait to be settled in the new house! Just one favor....send Maddox lots of prayers and hugs, he's got a long way to go.